Friday, April 23, 2010

My first attempt

Well hello folks! This is my first attempt at writing a blog. I have been reading alot of my fellow cfers blogs and thought maybe I should get into the groove. I guess I will start with a little bit of info about myself and what I mainly blogging about.
Well my name is Sean, im 34 and live in Ont Canada. I live in a small town and would never give it up. Its so great that everyone knows everyone. My mom lives a couple towns over. I have one brother,2 half sisters and 1 half brother(all from my dads first marriage) I also have a large extended family. My dad passed away back in 2000 and was one of the hardest things to deal with in my life.
I was born with Cystic Fibrosis. It never really affected my life to a great deal growing up. I lived a pretty much normal life. I was hospitalized once when I was 16 for phenomena and made a recovery after a 3 week stay. I continued living my life and working. I was always pretty slack with my physio therapy and doing me inhaled meds. The last couple of years I decided it was time to take charge and start looking after myself more proper.
But sadly the last year my health has taken a downward spiral :( It has now come to the point that I am on o2 24/7 and being assessed for lung transplant.
It scared the crap out of me thinking wow there is no way I could have gotten this bad, I had not really educated myself that much towards cf. So let me say within the last 5 months I have learned more about cf then I've known all my life. I have also had the pleasure of meeting alot of other fellow cfers.
I will try to keep this blog updated through out my journey towards transplant and fill you in on some stories of my life.

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