Well I have only met one other cfer that had passed away and that was back in the 90's. It was back when the internet was not a popular thing so I never really kept in touch. I would only see her the couple of times when I was in clinic and once when I was admitted. We did go out trick or treating once when I was admitted. It was when they didn't really know about cross contamination. Hell they even had cf camps.
Well now I had the joy of meeting (well online) a fellow cfer named Hattie. We bonded much like all my other cfer friends. She just recently got put on the list for transplant and have gone down hill rather quick. She is now in the scary end of cf. We are all praying that a donor comes along sooner then later. I cant imagine what she is going thru right now. I am sure hoping that I don't hit the bottom like she has. Just the emotional stress is terrible.
I had a hard time sleeping last night just thinking of all the outcomes. And it just plain SUCKS!
All I can do is offer my support and keep my fingers crossed that there is a call this weekend from someone that wasn't wise in their decision and comes to the decision of having to donate their precious organs.
Hang in there fellow cfer the call will come!
Well now I had the joy of meeting (well online) a fellow cfer named Hattie. We bonded much like all my other cfer friends. She just recently got put on the list for transplant and have gone down hill rather quick. She is now in the scary end of cf. We are all praying that a donor comes along sooner then later. I cant imagine what she is going thru right now. I am sure hoping that I don't hit the bottom like she has. Just the emotional stress is terrible.
I had a hard time sleeping last night just thinking of all the outcomes. And it just plain SUCKS!
All I can do is offer my support and keep my fingers crossed that there is a call this weekend from someone that wasn't wise in their decision and comes to the decision of having to donate their precious organs.
Hang in there fellow cfer the call will come!
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